8.10.2009

Perspective...

So I don't know about you, but there are certain themed blogs I love to follow. While it is sewing and cooking for my SIL, or crafts for my friend; I tend to look at other 'Heart Mom' blogs. When Braden was born I knew of one other person who had a heart baby, but I didn't know them. I had no support system in place, besides a very caring extended family eager to learn everything about how to care for this precious baby.

This week marks the 6th anniversary of Braden's 2nd and final Open Heart Surgery. This surgery was specifically to repair his Mitral Valve that was still leaking even after the first repair. While our first stay at Stanford had been extensive, we were shocked and excited that he healed so quickly the inpatient stay was only four days.
I remember,despite being NPO (no food or water) all night, that he was in such a good mood that morning. Even being a good sport taking pictures in the hotel before we left.

I remember having our final pre op meeting with the surgeon, Dr. Hanley, and being grateful that Braden was in such amazing hands, yet hating that we were back there again.
I remember him walking around the 'day room' where you waited your turn for preop, with his cute diapered buns hanging out of the back of his tiny gown with pink animals on it. I remember him cutting teeth and how it bugged him more than the surgery. I remember that since he was 10 months old, he got an actual tray of food brought to him- it was so cute- it had jars of baby food and a bottle of formula on it. I remember he didn't sleep at all after they extubated him until the afternoon we left. Meaning I didn't sleep at all. I remember him sitting up in his crib in the step down unit two days post op and how cute he looked reading his "Monkeys Jumping on the Bed" book and playing with toys. And I thought he was Superman.
And I remember when we brought him to the hotel, my MIL asked if they knew we had him out of the hospital.
So while I am blessed and lucky to have all this behind me. I am so grateful that I can be there for new friends going through Heart Trials for the first time with their precious babies. Some of the blogs I follow are strangers but I still cry with the setbacks and dance with the progress. I think back to the support staff at the hospitals back then and wish I had known a familiar face among the parents there too. Some of the stories I follow are very personal to me, because I grew up with the parents, or went to school with them. And I hope my words of 'wisdom' from everything like "bring slippers with soles in them" to "become friends with the Charge Nurse" help some. Being a HeartMom makes you an honorary MD (Mom Doctor). My friends used to laugh that I needed a white coat for all the medicines, dosages, procedures I knew.
So, it is just amazing to me that this little sick kid started FIRST GRADE today. He is getting so old. He was so excited last night he couldn't fall asleep. And this morning the only concerns he had were over what shoes to wear. He walked inside on his own, no tears, no hesitation. He ate lunch at school for the first time ever, and sat at a table of kids he didn't know. He tried hard to remember the names of the kids in his class. And he only gave me a minor panic attack when he forgot where he was supposed to meet the neighbors after school for pick up. After searching the school, he was still with his teacher and had finally remembered the spot. Whew! I am so proud of him. He is so happy to be back in school. I am enjoying this last week of just Berk time while it lasts. I am set for induction on the 17th - if this little guy doesn't mind his Momma and come sooner.

12 comments:

Rhonda said...

Do you try to make me cry?!!! He is superman... I remember it all like it was yesterday! Crazy that it was 6 years ago!
I'm glad that he had a great 1st day. I know you were stressin.
Oh, & he looks so tall! Little stud!

Mendy said...

He's come a long way!

Alifinale said...

That pic of him sitting up playing with the giant scar kills me. What a thing to go through and what a miracle he is today! Thanks for always sharing your thoughts and experiences

Melanie said...

I seriously have tears in my eyes reading that. I hope you know how grateful I am to you that you were willing to help me through my scary introduction into the world of a Heart Mom. I will always remember the hope that you gave me when I really needed it. Braden is so cute! And how exciting that you know your newest little man will be arriving in a week or less! Yay!

sherry said...

Loved this post. What a cute little family you were. Babies are so resilient. And Braden looks as healthy as a horse now. I am so glad that is mostly all behind you and you have the wisdom to give others. What a blessing it must be to them to not have to do it alone like you did.

The Burkinshaws said...

It seriously seems like yesterday. He is so handsome and I am so proud of him. I am also so proud of you and Rusty and how resilient you two are. Be proud of yourself you have gone through some stuff not many people will ever have to! Love you!!!

Jen & Blake said...

That is truly a miracle! I still am touched by him everytime you write. I know you are an amazing friend to many more heart families out there. Glad he had a good first day and that you made it through. Enjoy your week! I can't wait to meet #3:) xoxo

Lauren Howell said...

Every time you post about Braden's Heart surgeries I cry. When my mom reads from her journal about some of the hard trials that she endured when we were young, she always says that there must have been angels around to help her get through them. I'm sure the same was true for you too.

megan allen said...

What a sweet post! Your boys have a great mommy. And anyone going through these trials that you have already endured is so lucky to have you there to help them! You are the Best!

Alma said...

Nice to read Braden's story, although those early photos still bring tears! With three healthy boys, you and Rusty are truly blessed.

Amanda said...

I can't even imagine having a baby go through heart surgery! It about killed me just to have a 2 year old have eye surgery!

I think it is so hard as a mom to send a kid to first grade - all day!

The McBrides said...

Your boys are adorable! It's neat to see a heart baby, no longer a baby, Braden looks great! My daughter is almost one and she's been through the ringer a few times already, but hopefully she's all done. Feel free to visit our blog!

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